DETERMIND Seldom Heard Groups

For the last 6 years, we have been exploring major inequalities (differences) and inequities (unfair differences) that people living with dementia and their family carers face. We have looked at inequalities and inequities that exist in the nature and quality of care provided, and people’s outcomes.

Our main DETERMIND study has highlighted that people from underserved groups can experience difficulties accessing dementia care. So, in this sub-study to DETERMIND we wish to better understand how we can address these challenges to ensure care is inclusive and maximises quality of life for everyone. This involves speaking to people with dementia from these underserved groups to hear their lived experiences.

To do this, we will recruit two new groups of people:

-          300 people recently diagnosed with dementia (within 6 months) from minority ethnic communities.

-          150 people who identify as LGBTQIA+ and have a dementia diagnosis (at any time point after a diagnosis).

The project will shine a spotlight on the experiences of LGBTQIA+ and ethnic minority communities. It will work closely with government and charities to shape better policy and research across the UK and beyond.

Interested in taking part?

We would love to hear from you if you are

-          from a Black, Asian or other underserved minority ethnic community and have received a diagnosis of dementia in the last six months

or

-          identify as LGBTQIA+ and have received a diagnosis of dementia at any time point

We want to learn from your experiences so we can address inequalities in the dementia care pathway. This will help deliver inclusive care and support for everyone, maximising a better quality of life for all communities.

Taking part in our research study involves:

-          Our friendly research team visiting your home or somewhere where you feel comfortable to talk about your experiences, your health, your memory and your wellbeing.

-          A friend or family member being present if you so wish.

Our visit will take approximately two hours, and we will work around your schedule to accommodate your timing. There are no right or wrong answers - we want to learn from your experiences.

Contact Dr Ben Hicks for more information on the study and to register your interest:

Email: ben.hicks@nottingham.ac.uk or mobile: 07881915776. You will not be under any obligation to take part.