DETERMIND - Minority Ethnic Seldom Heard Groups
What is DETERMIND Seldom Heard Groups about?
Since 2019, we have been exploring major inequalities (differences) and inequities (unfair differences) that are experienced by people living with dementia and their family carers. We have looked at inequalities and inequities that exist in the structure and quality of care provided, and that exist in people’s outcomes.
Our main DETERMIND study has shown that people from underserved groups can experience difficulties accessing dementia care. So we have started this ‘sub-study’ to DETERMIND (a smaller research project taking place within the larger DETERMIND project). By doing this sub-study, we want to better understand how we can address challenges to ensure care is inclusive and maximises quality of life for everyone.
Who can take part?
We would like to recruit 300 people recently diagnosed with dementia from minority ethnic communities (diagnosed within the last six months).
Those who take part can choose to be supported by a friend of family member for their interview.
What does taking part in the study look like?
A pair of researchers from our friendly team will visit you in your home or somewhere where you feel comfortable. They will ask you a range of questions about your experiences, your health, your memory and your wellbeing. You can read about the friendly research team members who might visit you on our Take Part page.
A friend, family member or other carer can also take part in the study and support you through it.
Our visit will take approximately two hours. Sometimes the visit will be longer, sometimes it will be shorter, but we will work around your schedule to accommodate your needs. If you’ve had enough of answering questions at any point, we can stop the visit. There are no right or wrong answers - we want to learn from your experiences.
Why is the study important?
By hearing about your experiences, we can start to:
Address inequalities in the dementia care pathway
Encourage inclusive care and support for everyone
Maximise a better quality of life for all communities
Through this project, we want to highlight how services and care can be improved for people from minority ethnic backgrounds who are diagnosed with dementia in future. In particular, we are hoping to find out how services can be inclusive of people’s needs. We will work closely with government and charities to advise on better policy and research across the UK and beyond.
Know someone who might be interested?
Download and print off our recruitment flyer for this study.
You could share it with:
A friend or family member
Your local community centre
An online peer support group
We are happy to translate any of our materials or send printed copies to your address. To request this, please Contact Us.
Interested in taking part or have more questions?
We would love to hear from you if you are from any underserved ethnic or religious community and have received a diagnosis of dementia in the last six months
Contact Dr Ben Hicks for more information on the study and to register your interest:
Email: ben.hicks@nottingham.ac.uk or mobile: 07881915776.
After contacting us, you will not be under any obligation to take part.
We are also recruiting people living with dementia who are LGBTQIA+!
Our other ‘Seldom Heard Groups’ study is aiming to interview 150 people from the LGBTQIA+ community, at any point after a dementia diagnosis. If you are LGBTQIA+ and from a minority ethnic background, you can take part in either study. You can find our more about 'DETERMIND- LGBTQIA+ Seldom Heard Groups’ here: