Publications

Below you can find a list of publications on findings from the research so far. If you have any questions, or would like a physical copy or plain English summary of any of our papers, please email us at spft.DETERMIND@nhs.net.

1. Who receives an early or timely diagnosis? Data from DETERMIND baseline. Alzheimer's & Dementia. 2025.

2. Predicting delayed diagnosis in dementia: the impact of coping style. Alzheimer's & Dementia. 2025.

3. The Importance of the Social Environment for People Living With Dementia and Their Carers: Qualitative Evidence From DETERMIND and PriDem on the Impact of COVID-19 Service Changes and Restrictions in England and Wales. Dementia. 2025.

4. “You like to be in control of your own destiny to a degree, don't you?”: conscientious autonomy and planning for future care with dementia. BMC Palliative Care. 2025.

5. “My Wife and I Invariably Go Together”: A Mixed Methods Analysis of Physical Activity and its Influences on Older Adult Dyads. Alzheimer's & Dementia. 2025.

6. An Exploration of the Peri-Diagnostic Experiences of Lesbian, Gay and Bisexual People With Dementia Using the Candidacy Framework. International Journal of Geriatric Psychiatry. 2024.

7. Long-term impact of the COVID-19 pandemic on the quality of life of people with dementia and their family carers. Age and Ageing. 2024.

8. The role of uncertainty in planning for self-funded social care for older people with a diagnosis of dementia. Ageing and Society. 2024.

9. How do quantitative studies involving people with dementia report experiences of standardised data collection? A narrative synthesis of NIHR published studies. BMC Medical Research Methodology. 2024.

10. Physical Activity in Community-Dwelling Older Adults: Which Real-World Accelerometry Measures Are Robust? A Systematic Review. Sensors. 2023.

11. Using digital technologies to facilitate social inclusion during the COVID‐19 pandemic: Experiences of co‐resident and non‐co‐resident family carers of people with dementia from DETERMIND‐C19. International Journal of Geriatric Psychiatry. 2023.

12. Supporting social inclusion in community-dwelling men with dementia. Ageing, Men and Social Relations. 2023.

13. Emotion-focused dyadic coping styles used by family carers of people with dementia during the COVID-19 pandemic. Dementia. 2023.

14. Standardised data collection from people with dementia over the telephone: A qualitative study of the experience of DETERMIND programme researchers in a pandemic. Dementia. 2023.

15. Identifying modifiable psychosocial outcomes to maintain physical ACTIVity and promote independence in DEMentia: the ActivDem study. Alzheimer's & Dementia. 2023.

16. Receipt of help by people with cognitive impairment: results from the English Longitudinal Study of Ageing. Aging & Mental Health. 2023.

17. The role of uncertainty in planning for self-funded social care for older people with a diagnosis of dementia. Ageing & Society. 2023.

18. Socioeconomic inequality of long-term care for older people with and without dementia in England. Ageing & Society. 2022.

19. A cohort study of the impact of COVID‐19 on the quality of life of people newly diagnosed with dementia and their family carers. Alzheimer's & Dementia: Translational Research & Clinical Interventions. 2022.

20. Predictors of loneliness during the Covid-19 pandemic in people with dementia and their carers in England: findings from the DETERMIND-C19 study. Aging & Mental Health. 2022.

21. ‘Pushing back’: People newly diagnosed with dementia and their experiences of the Covid‐19 pandemic restrictions in England. International journal of Geriatric Psychiatry. 2022.

22. A Longitudinal Study of Functional Unmet Need Among People with Dementia. Journal of Alzheimer's Disease. 2021.

23. Emotion regulation and decision-making in persons with dementia: a scoping review. Dementia. 2021.

24. DETERMinants of quality of life, care and costs, and consequences of INequalities in people with Dementia and their carers (DETERMIND): a protocol paper. International Journal of Geriatric Psychiatry. 2020.