Publications

Below you can find a list of publications on findings from the research so far. If you have any questions, or would like a physical copy or plain English summary of any of our papers, please email us at ben.hicks@nottingham.ac.uk.

  1. Does Early or Timely Diagnosis Benefit People with Dementia and Their Carers? A Systematic Review. Journal of Dementia and Alzheimer’s Disease. 2026.

  2. Who receives an early or timely diagnosis? Data from DETERMIND baseline. Alzheimer's & Dementia. 2025.

  3. Predicting delayed diagnosis in dementia: the impact of coping style. Alzheimer's & Dementia. 2025.

  4. The Importance of the Social Environment for People Living With Dementia and Their Carers: Qualitative Evidence From DETERMIND and PriDem on the Impact of COVID-19 Service Changes and Restrictions in England and Wales. Dementia. 2025.

  5. “You like to be in control of your own destiny to a degree, don't you?”: conscientious autonomy and planning for future care with dementia. BMC Palliative Care. 2025.

  6. “My Wife and I Invariably Go Together”: A Mixed Methods Analysis of Physical Activity and its Influences on Older Adult Dyads. Alzheimer's & Dementia. 2025.

  7. An Exploration of the Peri-Diagnostic Experiences of Lesbian, Gay and Bisexual People With Dementia Using the Candidacy Framework. International Journal of Geriatric Psychiatry. 2024.

  8. Long-term impact of the COVID-19 pandemic on the quality of life of people with dementia and their family carers. Age and Ageing. 2024.

  9. The role of uncertainty in planning for self-funded social care for older people with a diagnosis of dementia. Ageing and Society. 2024.

  10. How do quantitative studies involving people with dementia report experiences of standardised data collection? A narrative synthesis of NIHR published studies. BMC Medical Research Methodology. 2024.

  11. Physical Activity in Community-Dwelling Older Adults: Which Real-World Accelerometry Measures Are Robust? A Systematic Review. Sensors. 2023.

  12. Using digital technologies to facilitate social inclusion during the COVID‐19 pandemic: Experiences of co‐resident and non‐co‐resident family carers of people with dementia from DETERMIND‐C19. International Journal of Geriatric Psychiatry. 2023.

  13. Supporting social inclusion in community-dwelling men with dementia. Ageing, Men and Social Relations. 2023.

  14. Emotion-focused dyadic coping styles used by family carers of people with dementia during the COVID-19 pandemic. Dementia. 2023.

  15. Standardised data collection from people with dementia over the telephone: A qualitative study of the experience of DETERMIND programme researchers in a pandemic. Dementia. 2023.

  16. Identifying modifiable psychosocial outcomes to maintain physical ACTIVity and promote independence in DEMentia: the ActivDem study. Alzheimer's & Dementia. 2023.

  17. Receipt of help by people with cognitive impairment: results from the English Longitudinal Study of Ageing. Aging & Mental Health. 2023.

  18. The role of uncertainty in planning for self-funded social care for older people with a diagnosis of dementia. Ageing & Society. 2023.

  19. Socioeconomic inequality of long-term care for older people with and without dementia in England. Ageing & Society. 2022.

  20. A cohort study of the impact of COVID‐19 on the quality of life of people newly diagnosed with dementia and their family carers. Alzheimer's & Dementia: Translational Research & Clinical Interventions. 2022.

  21. Predictors of loneliness during the Covid-19 pandemic in people with dementia and their carers in England: findings from the DETERMIND-C19 study. Aging & Mental Health. 2022.

  22. ‘Pushing back’: People newly diagnosed with dementia and their experiences of the Covid‐19 pandemic restrictions in England. International journal of Geriatric Psychiatry. 2022.

  23. A Longitudinal Study of Functional Unmet Need Among People with Dementia. Journal of Alzheimer's Disease. 2021.

  24. Emotion regulation and decision-making in persons with dementia: a scoping review. Dementia. 2021.

  25. DETERMinants of quality of life, care and costs, and consequences of INequalities in people with Dementia and their carers (DETERMIND): a protocol paper. International Journal of Geriatric Psychiatry. 2020.

An illustration of Brighton beach, one of our study sites. The illustration shows Brighton Pier, surrounded by the sea, sand and deckchairs. There is a seagull sat on the rail, next to the DETERMIND pathway logo.

An illustration of Brighton beach, one of our study locations. The illustration shows Brighton Pier, surrounded by the sea, sand and deckchairs. There is a seagull sat on the rail, next to the DETERMIND pathway logo.